Lisa,
I'm so very sorry Bill, your husband, the one true love of your life, has passed away. I ALWAYS!!! HATE!!! having to say this for two reasons. The first being words sound so shallow at times, now being one of them, but because words are all we have, I hope you truly know how very sorry I am... The second is because just like my GIC friends have said, who have already responded to your over the top heartbreaking post, I "get" it... this total heartbreak SUCKS!!! BIG!!! TIME!!! TUTTAM!!! (total understatement to the absolute max!!!) Sending you the BIGGEST virtual hug...
Very briefly, I was my husband, Bob's, full time caregiver from the beginning of 2018, but he first showed signs of all the horrible things to come, in 2015, when we had to take frequent trips to the ER, where he was incorrectly diagnosed with a minor ailment, when what he was actually suffering from was kidney cancer. By the time it was correctly diagnosed almost a year later, right before Thanksgiving, the kidney cancer had spread to his lungs, and into his vena cava. Two days after Christmas, he had to have one of his kidney's removed, and his vena cava scaped. He was on the operating table for 7.5 hours, and almost died. At the time I thought this was the very worst thing that could have possibly happened. Little did I know what was in store for him, for us down the road... By the time Bob died on April 11, 2021, at 3:45 a.m., he had a specialist for just about every body part.
Backing way up, he was diagnosed with diabetes in 2005, suffered a major heart attack on February 3, 2009, had high blood pressure, high cholesterol, loss of hearing in one ear, suffered from paralysis in one arm, and approximately one year prior to his death, was diagnosed with Parkinson's Disease, but he suffered from symptoms many years prior to this diagnosis. I'm positive I'm leaving out a few diagnoses as I usually do, there were just so many of them!!!, TUTTAM!!!
Backing up again, all of Bob's specialists treated his medical conditions as chronic illnesses, medications kept everything under control. Until the beginning of 2018, when Votrient, the oral drug used to treat kidney cancer, stopped working. (Chemotherapy isn't effective in battling kidney cancer.) Up until the beginning of 2018, when we moved out of state (Bob was forced to retire from a job he loved), in spite of all Bob's numerous and serious illnesses, we were able to live a good quality of life. Although Bob's medications had side effects, they were manageable, and we were able to spend time with friends, go out for dinner, travel with friends, just enjoy life the very best we possibly could. When we made the decision to move, we had no idea that our move was going to signal the beginning of the end...
So much more I want to say to you, but I'm way too emotionally, and physically drained, to "talk" anymore right now. I'm so very glad..., so very grateful..., you have "met" some of my friends already, members of TGW (The Grief Warriors, the name Lou, who you've met, came up with to describe us. It is such a perfect name for our group, it stuck, and from that day forward, we became known as TGW...). My GW friends have already said everything I can think of plus more...
I'm so very glad they got here before I did, and have already welcomed you to our GIC "family." I can't say enough good things about this site. I know I would be nowhere as far along in this miserable journey (for lack of a better way to describe it), if I didn't have my GIC "family" to provide lots of virtual hugs, to comfort me, sometimes give me advice, always being here for me... no matter what. Backing up just a bit, although we offer each other advice, as we say, take it or leave it. We won't be the least bit offended. Do what feels right, what works best for you. We'll be here for you no matter what. You have found a safe place to land.
Just as this has become my safe place, I hope it becomes yours too. I hope you will stick around, get to "know" us, give us the chance to get to "know" you. I'm so sorry you had to find us, but so glad you did. You are no longer alone...
Sending you lots of hugs and love, wishing you peace, all of us peace. DEB
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