Bernadine,
It's truly a gift that you and Kenn were able to share your feelings, talk about his death openly, and at the same time, not dwell on it. Bob was a very stoic person. In spite of this, he was able to open up and share his innermost feelings with me about everything important, except for the most important thing of all, preparing for his death. He refused to acknowledge, or at least openly acknowledge, that there was nothing he could do to save himself from death. He wanted to live... in spite of how small his world had become..., in spite of all the pain he endured... To repeat what had become his favorite saying, "As long as I'm on the right side of the dirt, it's a good day."
Combined with this, was his wanting to always protect me from everything that would make me sad, stress me out, cause me pain. He wanted me to be happy above everything else. I did my very best to let him know that although I would always miss him with all my heart, I would be okay on my own. We talked about hospice, but he didn't want it. I tried to explain to him that hospice didn't mean he was giving up on life, that it was meant to improve the quality of life that he had. I tried talking to him about palliative care too, reminding him that if he chose palliative care, he could still receive as much medical treatment as he wanted. He didn't want this either. He wouldn't or couldn't, not sure which one, share his deepest feelings with anyone but me, and I'm positive there were many things he didn't share with me. He wanted to be, right up until the very last moment of his life, my protector, my knight in shining armor... There is no doubt in my mind, even during that last 24 hours of his life, even when he had suffered that final heart attack, he didn't know he wasn't going to survive. However, even when those chest pains hit signaling the beginning of the end of his life, he still begged me to get the ER physician (physician isn't exactly the word I'm thinking of here..) to call an ambulance ASAP, to transport him to the hospital he wanted to go to, the only hospital equipped to handle all of his very complicated health needs. No matter what happened in Bob's life, he was a fighter, always ended up on his feet, able to conquer every challenge life threw at him, except the one that no one can conquer..., DEATH.
It makes me over the top sad that Bob's final moments on this earth, were anything but peaceful... stripped of his dignity by the worst, most uncaring hospital staff I've ever encountered, and that I wasn't allowed to be with him for approximately the last 45 minutes of his life... It makes those floodgates open, makes me more sad than I can express in words..., that he wasn't able to share with me how he must have felt. So many things left unsaid between us... But, and this is one of those really BIG BUTS!!!, we were each other's one true love, and there are no words to describe how grateful, how lucky I was, to have been able to share so much of my life with Bob. He was my knight in shining armor..
I would gladly pass you a tissue if I could stop crying long enough to hand you a dry one... All of this SUCKS!!!
As always, sending you lots of hugs, wishing you peace, all of us peace. DEB
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