Rick,
From the beginning of 2018 to the day Bob passed away in April, just as you did for Deni, I put my life on hold, to take care of Bob. Bob's medical conditions were so complex, each one had a negative impact on the others in some way, that the only hospital able to address all of his many chronic health issues was anywhere between a one and half to two hour car ride from our house. There were many weeks when he had at least three visits scheduled. Unfortunately, I wasn't able to schedule all of the appointments for the same day. This meant we had to make at least three round trips to the hospital, sometimes on a weekly basis.
Many mornings, I had to wake Bob up at 4:45 a.m., just so we could be out the door and on the road by 7 a.m. He needed help with just about all of his ADL's. He was a very tall person, and had put on lots of weight due to his many chronic illnesses. I'm a much smaller person than he was, making it more difficult to help him. At the time, he had beginning stages of Parkinson's Disease but we didn't know it. It wasn't diagnosed until about a year before he died. Helping Bob get ready was a very slow and long process. It broke my heart every time, seeing my once strong, proud, stoic husband, who everyone else went to when they needed help or advice, struggle just to get his shirt on, eat his breakfast without spilling most of it, etc., etc,, etc., ... We were both exhausted before we even made it out the front door.
Once we finally hit the road, there were always a couple of traffic jams, or an accident that slowed everything down. It was very stressful because if we arrived late, we would have to wait even longer than the usual hour or two after his scheduled appointment time to be seen. In 2018, he was still strong enough that I could double park the car, get his rollator out of the hatchback, and help him get inside the cancer center. He was able to take the elevator to the appropriate floor and check himself in. Parking was always scarce, but it was the one time I was grateful that we had a very small car. (Most of the time I hated it because his rollator weighed over 20 pounds and if I didn't angle it just right, I couldn't get it inside the hatchback.) Lots more I could write about all of those trips to the hospital, but have already written the beginning of a book, so will stop here (for now.) I totally "get" how exhausting and demanding being a full time caregiver is. However, I would do it all over again in a split second for Bob. Bob was the one true love of my life. (I've got a box of tissues in front of me as I'm "talking" to you.)
I'm struggling to find out who I am, now that I'm no longer Bob's full time caregiver. The days seem endless... When Bob first passed away, I couldn't stand being in my house because of the traumatic circumstances surrounding his death, the reason I still can't open the doors to the guest bathroom and bedroom. I would run errands that I didn't need to do, did lots of window shopping with no intention of buying anything, and took as many long walks as I possibly could. (Have to submit this in two parts, it was too long!!)
I'm not originally from where I'm now living, we moved here in the beginning of 2018, made the plans way before we knew how rapidly Bob's health would deteriorate once here. I didn't make friends because my sole focus was taking care of Bob the best that I could. I was stressed to the max, exhausted, fried... Backing up just a bit, I only had one friend who lives several streets away from me to talk to. ( We kept running into each other when I was taking my long walks. One day she asked me how many miles I walk per day, and somehow we got into a really long conversation. Her husband died the year before Bob died. We instantly bonded and have been really good friends ever since. We both believe we were meant to meet, that it didn't just happen by accident.)
Backing way up, my heart goes out to you... I'm so very sorry, once again,
Rick,
I guess I set the world's record for the longest message. When I tried to post it, I got a message that it was too long, and it cut off more of what I wanted to tell you.
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