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Caring for a Loved One: The Letter Every Caregiver Should Write

 

Life doesn’t come with a manual, and neither does caring for a loved one who is dying. And yet so many caregivers I’ve met follow such a similar pattern of behavior, it would almost seem that instructions had been written for them to follow.

It goes a little something like this:

  1. tirelessly and selflessly care for a loved one for months and years on end
  2. put aside all needs and wants, plans and prospects
  3. feel tired and overwhelmed, yet grateful at the same time
  4. immediately replace occasional feelings of resentment, with guilt
  5. do this for as long as needed, until it is no longer needed
  6. use newfound abundance of time following loved one’s loss to second guess and question every choice made while caring for loved one; cycle with guilt and regret indefinitely

Sound familiar? It’s human nature of course, to doubt and second guess ourselves when big things happen in our life, and to think maybe we could have done more, or perhaps we should have done something different.

But caregivers seem to do this at a whole different level. Maybe it’s because the choices they make are so big. Perhaps it’s because their end result (the loss of their loved one) is always a bad one.

What I do know is that hindsight is 20/20. Cliched maybe, but true. And the problem is that without realizing it, we take what we know now and apply it to what happened then.

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Secondary Losses: Why Grief is So Hard & Lasts So Long

secondary lossesI find that most grievers are surprised by their grief. By the depth of it, the longevity of it, and the inflexibility of it.

On the one hand it seems obvious why we suffer so intensely after someone we love has died. The absence of someone who played such a significant role in our lives is going to leave a void that no one and nothing can fill. As time passes and we expect to be feeling better, we  instead face a daily assault of reminders that can trigger harsh and violent waves of grief that may sometimes be just too much to bear.

But why? Why, when we feel we’re working so hard, and getting the support, and being patient and taking the time to grieve – why do we still face this daily hurt that cuts so deep, and why does it continue to happen even as the months and years pass by?

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Grief Support: “I Want You to Know…”

shutterstock_138709043One of the best things about participating in a grief support group is the relief that comes at the realization that, finally, “I’m not alone”. There are others who can relate and who understand.

Knowing that you’re not “crazy”, and that other people have shared the same thoughts, and acted in similar ways. This safe haven where everyone else nods in agreement as you tell your story–what’s happened, where you are now, and as you wonder, what comes next?

With the right group and the right facilitator a grief support group can be one of the safest and most comfortable places to be.

And while I spend so much of my time encouraging people to participate in a group for just that reason there’s a second part of this that’s all very important to ask – what happens when we leave the cozy space of the group?

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Disenfranchised Grief: Stop Judging, Start Accepting

Disenfranchised GriefThere is a term called “Disenfranchised Grief” and it can be used to describe any time a person’s loss is not being validated or substantiated by those closest to them.

This creates a real problem for the griever. Not only do they have to struggle with the loss, but if they feel they have to defend the depths and complexities of their sadness to those around them, they may feel even more isolated, confused and alone.

Though largely unspoken, there are rules in grieving, and judgments being made about how sad we should be and for how long based on a number of factors. They can include the relationship we had with the person who died, their age when they passed, and in what way (sudden vs. expected) they died.

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Your Grief is Terrifying to Those Around You

 

HereGrief’s what you don’t expect when suffering with the grief of losing someone you love; that suddenly the majority of the people you spend time with (family, friends, coworkers) are afraid of you.

“Afraid of me?”, you wonder, because really, what is more frail or feeble, than a person in the throes of grief?

It may not appear that they are afraid of you. In fact, it’s likely they don’t realize it themselves.

But consider this: prior to the loss of your loved one you may have felt that you had a mostly supportive group of friends and family. And I think for most, our hope is that when bad things happen in life, it’s going to be those closest friends and family who will be there to support us.

And then…surprise! We lose a loved one, and suddenly the network of people we can turn to shrinks.

How could that be? Don’t they know that their support is needed now more than ever? What could possibly make it so that the people we care about retreat at the time when we need them most?

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